DIAGNOSIS
• Age of diagnosis
• Method of diagnosis: newborn screening, respiratory and/or gastrointestinal symptoms,failure to thrive
• CFTR gene mutations
• Sweat test results
 
CARE RECEIVED
• Location of care: clinic, hospital or home
• Providers seen during  clinic visit
• Reason for hospitalization: pulmonary exacerbation, transplant, gastrointestinal
• Length of hospital stay
 
DEMOGRAPHICS
Age
• Sex
• Race
• Ethnicity
• State of residence
• Personal and parental education
• Employment status
• Marital status
 
 
TREATMENTS
Antibiotics
• Mucus thinners
• Bronchodilators
• Anti-inflammatories
• Airway clearance techniques
• Pancreatic enzymes
• Nutritional supplements
• CFTR modulators
• Growth hormone
• Insulin
 
 
OTHER CONDITIONS AND EVENTS
• CF-related diabetes
• Asthma
• Sinus disease
• Gastroesophageal (acid)  reflux disease (GERD)
• Liver disease
• Allergic bronchial pulmonary aspergillosis (ABPA)
• Osteoporosis
• Depression and anxiety
• Pregnancy
• Transplant: lung, liver, kidney
 
 Website: https://www.cff.org